Let's Help Lilli with Crouzon Syndrome Afford Surgery

Kamenický Šenov, Prácheň / Organizer: Lillife, z.s., Tomáš Soukup moc.liamg@ikuosmot

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Let's Help Lilli with Crouzon Syndrome Afford Surgery

Amount raised 8 576 128 Kč of 10 000 000 Kč goal
Left 251 days
86 % z původního cíle
The campaign has ended 31. March 2025

Help by sharing

I've been through a lot already. But there's even more ahead of me.

Hello, I'm Lillinka, I'm almost 7 years old. I was discharged from the maternity hospital as a healthy little girl with big eyes. I still have them, but over time, many diagnoses and diseases have been added.


What troubles me the most is Crouzon syndrome, which is visible at first glance, hydrocephalus, which is hidden inside my little head, and tracheostomy, which is the tube that sticks out of my neck. I also suffer from hearing impairment, so I have to wear hearing aids. So far, I am managing all of this with my parents.


To breathe, eat, and speak normally, I need your help.

At the age of 9, I could undergo surgery on the middle part of my face, but unfortunately, this surgery is not performed anywhere in the Czech Republic, and no health insurance company covers it. I will probably have to go to Texas, where they know how to do it. The biggest obstacle to undergoing the surgery is its cost: this operation and the subsequent treatment cost about 10,000,000 CZK. This treatment procedure was also recommended to us by the Faculty Hospital in Motol.


My mom and dad cannot afford the amount for the surgery, which could change my life.

Without the help of many kind people, we won't manage.

Despite all the hardships, I am a cheerful girl. I love watching fairy tales, counting, and I adore sudoku and puzzles. To go to kindergarten, my mom had to leave her job at the Czech Police after 14 years to assist me. We regularly visit various doctors, mainly the Faculty Hospital in Motol, and also twice a year to Janské Lázně. Even though it's very time-consuming and expensive, everyone around me believes that all of it, including the surgery, will help, and I will live a full life.


Will you help me breathe, eat, and also speak better? I promise you, when I grow up, you'll hear about me again! :-) We thank every donor from the bottom of our heart, words cannot express our gratitude.


Patrons 4

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Nanotech

Partnerem sbírky je e-shop shop.nanotech-europe.cz a jeho zákazníci.

Znesnáze21 a Roman Čelikovský

Patronem sbírky je Znesnáze a in memoriam Roman Čelikovský

Patronem sbírky je Martínek a jeho rodina

Patronem sbírky je Martínek a jeho rodina

2954 donations

252 Kč — Anonymous donor about an hour ago

300 Kč — Anonymous donor about 2 hours ago

1 221 Kč — Anonymous donor about 3 hours ago

100 Kč — Anonymous donor about 3 hours ago

“Držím palce!”
1 000 Kč — Marek about 4 hours ago

500 Kč — Anonymous donor about 5 hours ago

“Nech sa darí”
100 Kč — Anonymný darca about 5 hours ago

“Hodně štěstí a sil Lilli a rodině”
373 Kč — Lukáš Veitz about 5 hours ago

777 Kč — Anonymous donor about 6 hours ago

252 Kč — Anonymous donor about 8 hours ago