WITHOUT SURGERY, KUBÍK WILL NOT SURVIVE – HELP A BOY WITH RARE VASCULAR DISEASE

Kubík is only three years old. He was meant to be a healthy and cheerful little boy — and he was, until a routine check-up at age three revealed something deeply alarming: Kubík’s blood pressure was dangerously high. And this was confirmed repeatedly.

What followed were countless tests, hospitalization, and weeks filled with uncertainty. Finally, the diagnosis came: mid-aortic syndrome — a rare and serious vascular disease. Kubík is the only child in the Czech Republic currently diagnosed with this condition. It causes critical narrowing of the main abdominal aorta and the arteries leading to his kidneys and intestines. Because of this, Kubík must take six different medications daily to try to control his blood pressure. Yet his levels often reach 150/100 mmHg, which is life-threatening for a child his age.

Every day, his family lives with the fear of a stroke, heart attack, or kidney failure. There is no time to wait.

Czech doctors have done everything they can. Kubík has already undergone several procedures, but none has brought lasting improvement. His condition is worsening, and the narrowed arteries are causing further complications, including repeated intestinal problems that could lead to a permanent stoma.

A specialized surgery in Boston: Kubík’s only real chance

Experts from Motol University Hospital reached out to Boston Children’s Hospital, where doctors have the world’s most extensive experience with this syndrome. The team reviewed Kubík’s case and prepared a plan for complex vascular surgery.

This operation is currently the only chance to save Kubík’s life.

The family applied for an exceptional coverage approval from their health insurance, but the outcome is still uncertain — and time is running out. Even if some costs are covered, expenses for travel, accommodation, stay in the USA, translation services, and medical escort will be enormous.

Kubík’s mother had to close the hair salon she built in their village, and his father left his job. Both parents dedicate all their time and strength to Kubík, hospital visits, and keeping the family together. They also care for their older son, Kája, for whom this situation is incredibly difficult. Yet they try to live with hope every day — and believe they can get through this with your help.

Kubík tries every day to live like other children — to laugh and explore the world. But his illness constantly limits and exhausts him. His condition is life-threatening.

Let’s help Kubík get the chance to live a full life. Let’s help him win this fight.